She might be No Poster Girl but Jocelyn describes just what fatigue really means for ME patients perfectly. I’m so grateful that I’m over my relatively wee bad patch and my heart goes out to those who are suffering so badly and for so long with a ME bad patch, it’s definitely not a pleasant experience.
If you’re a healthy person, how many things do you think you do per day?
Your to-do list at work might have a half-dozen things on it, but I’m talking about more than that. Maybe you run a few errands after work and do some housework when you get home, and you think that brings it up to an even dozen?
What if I told you you do a thousand things per day?
I say that to demonstrate my perspective as someone with ME/CFS. The difference between what you can manage and what I can manage is enormous, and it’s likely that you and I see our possible energy expenditures in an entirely different way. Those thousand things include actions you never think of, things you’re hardly aware of – things that you would never think of as taking energy, because to you they take such a negligible amount. But they…
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