A Tear

I am sad because I long for those fleeting good times and I wish that I might get them back, so that I could make them better, stronger, happier - anything just to show how much I cherish them.  I wish I could bottle them up and just live that life. But the most precious... Continue Reading →

Difficult Decisions and Brain Fog

It's a decision that I face every day, maybe even twice a day. Or, at least, I should be facing it but because of the brain fog I often can't remember if I have remembered to or not. (Life's got very like that). You rip open the packet, out it comes and off you go... Continue Reading →

Hip Surgery and ME: Society Has It Wrong

How do we respond to others’ health problems? With cards and flowers and promises of support and get well wishes? Or with suspicion and judgement and oblivion and avoidance? Maybe it depends on the nature of theur health problem. Maybe we only perceive the visible as ‘real’. Maybe we only understand what is required of us as onlookers and wellwishers in what is really quite a narrow spectrum of health problems. Maybe we don’t have the rnergy or understanding or commitment to be there for the ‘long haul’. Maybe we only understand two outcomes of illness: cure or die. Maybe we need to learn, to be taught, to train ourselves to see, understand and accept a bigger picture, a bigger model of illness.

Thoughts About M.E.

I am proud to share a note that my husband, Ed Burmeister, wrote last week. He initially posted it on Facebook only where it received a lot of attention and was shared more than 250 times. It really resonated with the community.

Therefore, I talked him into allowing me to post it here as well. I am blessed to have such a supportive and loving spouse.

Last Wednesday, I had a complete hip replacement.  It was a short procedure (1-1/2hours). No general anesthesia required.  I was out of bed the day of surgery and home after two days.  On Monday, I started driving again and really could have done so on Saturday already. Yesterday, I returned to work. I was comfortably working away, largely free of pain.  I walk without a limp and with no assistance and am pretty much unrestricted in my activities. I never needed narcotic painkillers after…

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The Nature of Me

What is me? A shadow or a being? Something lost or something to be found? If at birth I am me Then once I was me But now? Who is me? If at death I am me Then I am not yet me Then what of now? Is me just a hope or dream? Something... Continue Reading →

Vintage Buttons

Last summer I was working on a knitting project and I needed buttons.  Lots of buttons.  Preferably cute ones.  So I asked around my friends to see if they had any they could donate.  One friend gave me a box full of buttons; unfortunately most of those were way too big for what I was... Continue Reading →

Where there is no spring and no autumn: the world of rapid cycling

What are your own seasons?

purplepersuasion

Seasons are funny things. If you live in a equatorial region, you may barely experience them at all; if you live in a polar region you probably live part of the year in unremitting darkness which eventually gives way to “white nights”. Living through a heat wave that has gone on for weeks, it can seem impossible that our streets and parks and fields were once covered in snow. Bizarre, even. Yet as we crunch over layers of ice, in that strange silence that comes only after snowfall, it is the sensation of heat and light, of long days and high pressure, that we cannot recapture. No wonder that so many films and novels play with the idea of perpetually cold environments, or create desert planets, or dream up worlds in which the seasons are very different to our own.

I think I’m on pretty safe ground in assuming many…

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Having a BPD diagnosis - my reality | Mind, the mental health charity - help for mental health problems.

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