Finding Peace

To all the friends who took something and left, I'm glad that I could give you something for your journey.

A Tear

I am sad because I long for those fleeting good times and I wish that I might get them back, so that I could make them better, stronger, happier - anything just to show how much I cherish them.  I wish I could bottle them up and just live that life. But the most precious... Continue Reading →

Difficult Decisions and Brain Fog

It's a decision that I face every day, maybe even twice a day. Or, at least, I should be facing it but because of the brain fog I often can't remember if I have remembered to or not. (Life's got very like that). You rip open the packet, out it comes and off you go... Continue Reading →

Pain Relief

- What is that noise?  Oh, it's such a strange noise. - That noise is silence. - Silence?  I do not know it.

Pull

A great chasm hewn in the ground Hard and deliberate, rectangular and right-angled, unnatural Step to the edge, risk an unwelcome dive Awkward landing, gut-wrenching pain Deep and abyss-like, an eerie carcass The wide curving steps were once an invitation, a touch of luxury Now they're at odds to everything, chipped on the edges Like... Continue Reading →

Hip Surgery and ME: Society Has It Wrong

How do we respond to others’ health problems? With cards and flowers and promises of support and get well wishes? Or with suspicion and judgement and oblivion and avoidance? Maybe it depends on the nature of theur health problem. Maybe we only perceive the visible as ‘real’. Maybe we only understand what is required of us as onlookers and wellwishers in what is really quite a narrow spectrum of health problems. Maybe we don’t have the rnergy or understanding or commitment to be there for the ‘long haul’. Maybe we only understand two outcomes of illness: cure or die. Maybe we need to learn, to be taught, to train ourselves to see, understand and accept a bigger picture, a bigger model of illness.

Thoughts About M.E.

I am proud to share a note that my husband, Ed Burmeister, wrote last week. He initially posted it on Facebook only where it received a lot of attention and was shared more than 250 times. It really resonated with the community.

Therefore, I talked him into allowing me to post it here as well. I am blessed to have such a supportive and loving spouse.

Last Wednesday, I had a complete hip replacement.  It was a short procedure (1-1/2hours). No general anesthesia required.  I was out of bed the day of surgery and home after two days.  On Monday, I started driving again and really could have done so on Saturday already. Yesterday, I returned to work. I was comfortably working away, largely free of pain.  I walk without a limp and with no assistance and am pretty much unrestricted in my activities. I never needed narcotic painkillers after…

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I am Angry

I am angry because of the things I don't have nor ever had I am angry because the things that I did have, I never really had I am angry because I have been lied to or deceived I am angry because so many things were spoilt, even ruined I am angry because I am... Continue Reading →

The Nature of Me

What is me? A shadow or a being? Something lost or something to be found? If at birth I am me Then once I was me But now? Who is me? If at death I am me Then I am not yet me Then what of now? Is me just a hope or dream? Something... Continue Reading →

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